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10 | InTouch SPRING 2025 REFLECTIONS ON THE CURESMA CONFERENCE Thanks to the generous support of the Bradley Jenkin Memorial Fund, our family had the opportunity to attend the 2025 CureSMA Conference. FEATURE Imagine the excitement of hundreds of people cheering as doctors and researchers clamber into wheelchairs to face off in a high-stakes relay race, only to be soundly beaten by the real experts: children living with Spinal Muscular Atrophy. That’s how the 2025 CureSMA Conference kicked off on opening night — an energetic, joy-filled moment that set the tone for an unforgettable few days of learning and connection. Recently, our 4-year-old son Elliot, who lives with Spinal Muscular Atrophy, had the opportunity to attend the CureSMA Conference in California with our family. We are Stronger Together Jen and Elliot enjoying the rides at Disneyland. grateful for the support of the Bradley Jenkin Memorial Fund and the Luke 18:1 Foundation to make this possible. The annual CureSMA Conference is the largest gathering in the world for individuals and families affected by SMA, as well as researchers, doctors, and allied health professionals. This year, more than 2,800 attendees from over 40 countries gathered at the Disneyland Hotel for the event. It can sometimes feel isolating when you’re parenting a child with a rare disease, but attending this conference gave us
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