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FROM THE DESK 2 Kōrero with Trevor From the desk of our Chairperson. NEWS ROUNDUP 3 In memorium Alison Riseborough. 3 Staff movements 4 Swimming with the turtles Rick Durey shares his recent experience in the Cook Islands. FEATURES 6 Callum revs up support for MDANZ Introducing our new 'speedy' Ambassador – Callum Hedge. 8 Ready, set, roll! The ‘DMD brothers’ are ready to roll for our annual appeal. 11 Accessible Aotearoa An amazing 3-week road trip adventure. 14 Roll1k for MDA kids activities Time for some wheelie cool fun! YOUR CONDITION 16 Spinocerebellar Ataxia RESEARCH NEWS 19 Progress on key research PO Box 12063, Penrose, Auckland 1642, New Zealand Freephone: 0800 800 337 NZ Phone: (09) 815 0247 International prefix (00649) Editor MDANZ National Support Office info@mda.org.nz | 0800 800 337 Design The Artset | the.artset@gmail.com www.theartset.design Contributions We welcome contributions, comments and letters to the editor. We thank all contributors to this edition. Subscriptions In Touch is available free to people with neuromuscular conditions, their families, health and education professionals and other interested people. Advertising In Touch welcomes advertising enquiries. For a rate card, contact the MDANZ office. Printing Inkprint Limited www.inkprint.co.nz | 09 441 6011 The opinions and views expressed in this magazine are not necessarily thos e of the Muscular Dystrophy Association . All material in this magazine is copyright. You must therefore contact the editor for permission before copying or reproducing any of it. Charities Commission Registration: CC31123 ISSN 2815-9454 (Print) ISSN 2815-7826 (Online) MDANZ would like to thank the following supporters: Nick Lingard Foundation Also thanks to the ANZ Bank Staff Fund, ARA Lodge No 348 IC Charitable Trust, NZ Post Community Post, One Foundation, Richdale Charitable Trust and the Independent Living Service for their continuing support. We would also like to acknowledge our corporate sponsors: ISSUE NUMBER 121 SPRING 2023 14 6 Contents 4 8 14