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Rare Disorders Report Launch at Parliament On the 10th May Rare Disorders NZ launched Rare Disorders Insights Report: Pathways towards better health outcomes , developed by Business and Economic Research Limited (BERL). NEWS ROUNDUP This report was commissioned by Rare Disorders NZ to obtain an insight into the likely prevalence of rare disorders in New Zealand, considering both diagnosed and undiagnosed incidences. The report is based on publicly available data and a high-level literature scan of recent New Zealand and international studies that discuss the prevalence of rare disorders, as well as burden factors that need to be considered in the development of health policies. Comfort Cough The Co fort Cough is an excellent easy to use controls. It can be set up by a clinician in auto mode, and used in the home by the patient or caregiver. breathingandmedical.co.nz | solutions@breathingandmedical.co.nz | 0800 335 333 Congrats to our new Dukies! Congratulations to Jack Lovell-Hurst and Asher Hovell. Jack, from the MDANZ South Island branch, has completed his Duke of Edinburgh Silver Level award and Asher, from the Northern Branch, has completed his Bronze Level award. We are proud of your success in completing the Award and for your determination in seeing it through! You can read the report here ... tinyurl.com/24y4mx45 IBM Group Lunch Some wonderful feedback and photos sent through frommember Melanie Wilson after the IBM Lunch in March, organised by the Northern Branch. “Can’t thank you both enough for all you did for our IBM lunch, last week. Lynn, you were fabulous, so organised and on the ball. Your prompts were so appreciated. Thank you for being you! Having two newly diagnosed IBM’ers is what it is about for me. They now know what’s available if they feel the desire to meet again”.