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(AAAAG(11)), whereas in CANVAS the repeat configuration is altered and the number is increased (AAGGG(n)) to a range from about 400 to 2,000, with the majority of cases having about 1,000 repeats. Since this discovery was made, additional pathogenic allele configurations have been identified. Much of this research was done right here in New Zealand and more studies are currently underway. Treatment There is no known cure for CANVAS and treatments are generally aimed CANVAS at managing symptoms such as cough, pain, and dizziness. CANVAS is progressive and a person with this condition may eventually require the use of a mobility assistance device and may need assistance to perform daily tasks. Modification of the home with things such as grab bars, raised toilet seats, and ramps will be helpful. Speech therapy and communication devices such as writing pads and computer-based devices may benefit those with affected speech. Weighted eating utensils and There is no known cure for CANVAS and treatments are generally aimed at managing symptoms such as cough, pain, and dizziness. CANVAS is progressive and a person with this condition may eventually require the use of a mobility assistance device and may need assistance to perform daily tasks. button hooks for dressing can help maintain independence. Weight control is important because obesity can exacerbate difficulties with ambulation and mobility. Individuals experiencing swallowing difficulties (dysphagia) may suffer significant weight loss and will benefit from seeing a speech language therapist and dietician. People with CANVAS should be followed up by a neurologist regularly with visits to physiotherapists, occupational therapists and other specialists as needed. To speak to us about leaving a gift in your will, please email info@mda.org.nz We have been helping Kiwi families for more than 60 years and by making a bequest, you are ensuring the sustainability of our organisation so that we can continue to be there for generations to come. Your good will benefits families Any bequest, no matter what size, will directly help those living with muscle wasting neuromuscular conditions, and enable us to continue our work within your community.