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18 | InTouch AUTUMN 2026 of her life, it is the foundation of everything she does. Jessica lives an active and full life. She is heavily involved in her church, where she has been continually encouraged to step beyond what she once thought were her limits. She works full-time as a Data Analyst at the University of Waikato and, in April 2025, graduated with a Bachelor of Computer Science, majoring in Data Analysis. Studying and working full- time while managing CMT required resilience, but it also demonstrated what is possible with strong support and determination. Her weekdays start early. At 4:15am, Jessica heads to the gym with a group of young women from her church. What began only weeks ago as a step of discipline has grown into a powerful routine. There are still exercises she can’t do, and she listens carefully to her body, but she has seen real growth in her strength and energy. She describes this as a season where her capacity is being stretched. Jessica recognises that every person’s journey with CMT is different. She doesn’t claim to understand why improvement comes in different ways for different people. But in this season, she is deeply grateful for what God has done in her life. Support from MDANZ has also been an important part of her journey. During her studies, Jessica accessed the Bradley Jenkin Memorial Fund to help purchase a specialised computer chair, which made long hours of study far more manageable. She has also used the Fieldworker Service when needed. Each year, she attends the Muscular Dystrophy Northern Family Camp, which she describes as a highlight. It’s a weekend filled with laughter, connection, and understanding. A place where no one feels like the “odd one out.” In everyday life, younger members often feel different, but at camp it’s often siblings who feel that way instead. Being surrounded by people who truly understand is powerful. Jessica also runs her local MDA coffee group in Hamilton, meeting monthly on Saturdays. It’s a simple but meaningful way to build connection and community. She encourages others to get involved in similar groups if they can. One message Jessica shares often is the importance of self-advocacy. People living with CMT know their bodies best. If advocating feels overwhelming, she encourages bringing someone along for support. Medical appointments can be daunting, but having someone in your corner makes a real difference. Clear communication and confidence in lived experience matter. Jessica is careful not to compare her journey with anyone else’s. Every experience with CMT is unique. Instead, she focuses on stewarding her own journey well; celebrating small wins, listening to her body, accepting help when needed, and stepping beyond her comfort zone when she can. To those who know her, one thing is clear: CMT is only one part of Jessica Anderson’s story. Her faith, MORE THAN A DIAGNOSIS: JESSICA’S STORY her community, her work, and her determination shape her far more than any diagnosis ever could. Jessica may live with CMT, but it does not have her. Top: Jessica happy on a paddleboard during a Young Adults Church outing. Paddleboarding was something she had never done before. Above: Three generations of CMT in their family – her grandad, John Bolton, her mum, and Jessica. Continued from previous page.