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AUTUMN 2026 InTouch | 17 When people meet Jessica Anderson, they quickly realise that her life is defined far more by faith, purpose, and determination than by any diagnosis. Still, Charcot-Marie-Tooth (CMT) has been part of her story since 2012, when she was diagnosed the year after leaving high school. Jessica’s mum had been diagnosed a couple of years earlier, so the possibility was already on the family’s radar. Jessica became the second person in her family to receive a confirmed diagnosis. Since then, several more relatives have also been diagnosed. Today, she represents the third generation in her family with confirmed CMT and possibly the fourth. The diagnostic process itself was relatively straightforward. Jessica’s GP referred her for a blood test, though there was some concern it might be declined because it hadn’t come through a specialist. Thankfully, it was accepted. Her sample was sent to Scotland for testing, and the results confirmed CMT1A. For Jessica, the diagnosis brought an unexpected sense of relief. It gave clarity and validation. The symptoms she had been experiencing finally had a name, and she no longer felt like they were “just in her head.”With that understanding came the ability to begin processing what living with CMT would mean for her future. Over the years, Jessica’s symptoms have fluctuated. At present, she is in a positive season where things feel manageable. She experiences Living with CMT through faith, resilience, and community. More than a diagnosis: Jessica’s story Top: Jessica and her mum, Heather Anderson, at church on Christmas Day in 2025. Above: Jessica standing in front of the University Lakes at the University of Waikato on her graduation day. achy feet and back pain if she stands for long periods, along with some wrist issues, particularly in her left hand. She considers herself fortunate that she does not rely on regular pain relief. In the past, Jessica has used a range of mobility aids, including crutches, a walking stick, ankle-foot orthotics (AFOs), and hand controls for driving. Right now, she isn’t using any of them. While she knows the future with CMT can be unpredictable, she chooses to focus on what she can do today and to appreciate her current abilities. Jessica has learned to listen carefully to her body and pace herself when needed. She has also learned that mindset matters. She refuses to let CMT define the limits of her life. Her faith is central to how she understands her identity. As a Christian, Jessica believes who she is, comes from her relationship with Christ, not from her diagnosis. CMT is part of her story, but it does not define her. She often says that while she may have CMT, it does not have her. This season of life feels unique. Although CMT is considered progressive, Jessica has experienced noticeable improvement recently. She gives God the glory for that. Through consistent prayer, intentional care for her health, and the unwavering support of her church community, she has grown stronger physically, emotionally, and spiritually. Her faith in Jesus is not a small part YOUR CONDITION IN REVIEW Continued over ...