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8 | InTouch AUTUMN 2024 Dylan does good! Northern Member Dylan, 23 years, shaves off his man bun for charity! I started growing my hair during Lockdown in 2021. Since all the barbers were closed, I had this brilliant idea pop in my head. I have heard about hair loss through sickness. I felt sad and always wanted to contribute in some way. I thought of growing my hair long so I could help someone. After discussions with my mum and dad, we researched and talked to the agent who would take my hair as donation. I had to grow NEWS ROUNDUP From top: Dylan Patel and his man bun, Dylan mid-chop with his hairdresser, Dylan reveals his new look! • the GRAND CANYON clinical trial sponsored by Edgewise for Becker Muscular Dystrophy • the AOC – 1001 clinical trial sponsored by Avidity for myotonic dystrophy type 1 The Research Clinic are also carrying out feasibility work through the TREAT NMD international network for limb girdle muscular dystrophy, SMA, myotonic dystrophy types 1 and 2 and DMD as well as providing data to support applications for pharmac. Contact If you would like to discuss the trials above or would like to learn more about Punaha Io the New Zealand Neuro-Genetic Registry and Biobank or the Neurogenetics Research Clinic, please contact the coordinator: Phone: 09 923 8652 Email: cbr.nrc@auckland.ac.nz ... continued from previous page. 14 inches plus persevering with hot weather that made my head sweaty. I did have so many compliments of how handsome I looked with long hair. Anyway, the time came when my sister and her family were visiting us, I thought, ‘let’s call it a day’. I went and discussed a haircut with my hairdresser who had always helped me maintain and keep it tidy. She was very happy and felt privileged to cut my hair as per instructions. My hairdresser who is recovering from an illness, was very obliged to be part of the this journey and was happy be the person who did the final haircut for me. It is lovely to have known my hairdresser for many years and a very big thanks to them as I didn’t get charged for that haircut as it was going to Charity. I am very proud of myself for having contributed to the community, it was the least I could do. If there is another opportunity to do something else for people in need, I will do it again. Dylan Patel