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12 | InTouch WINTER 2025 CRAIG POLLOK'S INSPIRING JOURNEY OF LIFE LIVED WITH A RARE MITOCHONDRIAL CONDITION Diagnosed with a rare strain of MELAS at age four, Craig shares how he thrives through connection, perspective, and passion FEATURE “Rather than focus on my disability, I focus on what I can do. It’s always about moving forward”Craig says. Craig Pollok has never known life without a condition. Diagnosed at age four after his mother noticed a change in his gait while walking home from kindy, what began as a simple GP visit turned into a journey involving extensive testing, a biopsy, and even blood samples sent to the UK. There, a doctor completing a PhD confirmed a rare diagnosis - MELAS (Mitochondrial Encephalomyopathy, Lactic Acidosis, and Stroke-like episodes). But Craig’s case wasn’t typical. He has one of the rarest subtypes, with only four known cases in the world sharing his specific strain. Unlike more common variants of MELAS, Craig’s body lacks the ability to process protein effectively, placing his condition in the category of Type 1, while most others live with Types 2, 3, or 4. Today, Craig works full time as a business analyst at Ricoh, navigating everyday life with a mix of determination, humour, and resilience. His condition makes walking difficult and brings significant fatigue, turning ordinary tasks into longer, more deliberate efforts. Yet, his focus is unwavering, “Rather than focus on my disability, I focus on what I can do. It’s always about moving forward” he says. Craig lives in central city and works in a hybrid role, Living with passion and a purpose Above: Craig Pollok. combining office and remote work to suit his energy levels. He describes himself as an extrovert (someone who draws energy from people and thrives on interaction) and this trait has helped shape not only his attitude but his entire approach to life. “I don’t remember not having a condition,” he says. “At primary school I was using a manual wheelchair, none of the modern technology we have today. But it gave me physical ability and a reason to talk to people, to ask for help.” His condition is degenerative and will worsen with time. Craig now uses a walker for short distances and a scooter for longer journeys. Despite these challenges, his everyday life is full. Yoga twice a week, regular walks, and even adaptive rock climbing with friends. Craig is always looking for new ways to stay active and connected. He joined MDANZ about five or six years ago and speaks highly of Lynn Williams, his Fieldworker, who he regularly checks in with. “ She’s great. I catch up with her to stay in the loop with what’s happening in the MD space—funding, grants, access to support.” he tells In Touch . He’s also attended community events through MDANZ, building a stronger connection with others navigating similar journeys.
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