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participation, pain and fatigue management, as well as life domains and employment. • Several initiatives have been designed to map CP through the lifespan. While these are international at the moment, New Zealand is starting to follow the same basic principles in terms of future advocacy. • Different elements of medicine and health are starting to be responsive to demands for change particularly when examining the gaps in services. For example, the introduction of the reforms and the formation of the Ministry of Disabled People (Whaikaha). If you have an interest in shaping knowledge translation and the research agenda, contact us ( amy@cpsociety.org.nz ) for ways to help with the CPS’s advocacy initiatives. CPS and NZCPR are keen to take action to ensure greater involvement in decision making from people with lived experience. We are forming a CPS Research Hub of individuals and families, to assist in building NZ’s health research to be responsive to people’s needs. Watch out for upcoming promotions for our next get together. References: 1 Lancet Neurol. 2023 Feb;22(2):101. doi: 10.1016/S1474-4422(23)00006-6 2 Global report on health equity for persons with disabilities - www.tinyurl.com/h9w4bkbh 3 Community involvement in CP Research – www.tinyurl.com/muk9n8dj 4 Mapping the focus of research conducted with adults with cerebral palsy: an overview of systematic reviews, Hickey et al. Disability and Rehabilitation 2023, Vol. 45, No. 2, 185–208 https://doi.org/10.1080/ 09638288.2022.2032412 Anna Mackey (left) is Cerebral Palsy Society’s Project Manager, New Zealand Cerebral Palsy Register, and Amy Hogan (right) is the Society’s Researcher and Member Support Advisor. Remember to bring your getCard in-store Call & Collect: 0800 625 100 Instore: Botany, Browns Bay, Royal Oak getThis&That at Independent Living Make daily living easier with our Mobility Products & Daily Living Aids • Daily Living Aids • Bathroom Aids • Kitchen Aids • Mobility Equipment • Lift Chairs & Beds • Continence Products • Hire Equipment • Repairs & Services
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