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RESEARCH The CaPTuRE research project is exploring a New Zealand specific Cerebral Palsy Toolkit to support families. In 2020-2021, a team from Starship, the University of Auckland and the Cerebral Palsy Society ran the CaPTuRE research project. Receiving a CP diagnosis in NZ BY DR ANNAMACKEY Starship Child Health Research Officer Lease a trike today! Fun and freedom on three wheels It looked at the family experience of receiving a diagnosis of Cerebral Palsy in New Zealand. The project gathered information from clinician and family surveys, and a series of co- design workshops held across Auckland and the Waikato. Co-design creates solutions with, not for, users of services, products or experiences. The workshops were central in exploring issues around the diagnosis process between family/carers and clinicians.  Key information gaps were identified for families, in the Cerebral Palsy diagnosis process, and along the developmental stages. A recommendation from this process was the need for a New Zealand specific Cerebral Palsy Toolkit to support families with useful resources and information. In 2022, we look forward to developing this idea further, in conjunction with the Paediatric Society Cerebral Palsy Network and Cerebral Palsy Society. We will feedback to the Society members throughout 2022 on our progress. If anyone is interested in contributing ideas for the Toolkit’s content, email Cerebral Palsy Society Researcher and Member Support Advisor Amy Hogan amy@cpsociety.org.nz. Information and outcomes from the CaPTuRE project: www.tinyurl.com/2yk7h6y2 Our custom-built trikes are available to CPS members. Riding a trike may help increase wellbeing and fitness. Keep up with family and friends, and enjoy the wonderful feeling that independence brings. Information: www.cerebralpalsy.org.nz > Member Services > Our Programmes. Email us at cpsociety@cpsociety.org.nz or phone 0800 503 603. Assessments are carried out before a trike is leased, and it will be fitted and adjusted to the rider. The user must be a current financial member of the Society, and have Cerebral Palsy. Assessments, and trike pick ups, are at our Auckland office. $ 10 PER MONTH ONLY