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IN REVIEW Cerebral Palsy Register In July 2021 the Society entered into a partnership with the New Zealand Cerebral Palsy Register (NZCPR). The purpose of this strategic alliance is to improve the quality of CP data available for Aotearoa. The NZCPR is working towards understanding the prevalence of Cerebral Palsy in Aotearoa; the range of functional abilities of those living with Cerebral Palsy, and importantly idenitifying any inequities for different groups with Cerebral Palsy, including Māori people with Cerebral Palsy and people from different regions across Aotearoa. This high-quality health information will place the Society in an even stronger position to advocate for the needs of people with CP and their whānau which includes advocacy for equitable access to health services; interventions and treatments and other priority issues. Providing a voice for people living with Cerebral Palsy Cerebral Palsy Clinical Network The Society also co-leads the development of the Paediatric Society of New Zealand Cerebral Palsy Clinical Network - the first clinical network in New Zealand to have consumer- driven goals - and we continue to shape and influence it based on community feedback, priorities and needs. We began the process of reviewing the limited amount of research that exists on people living with severe or complex Cerebral Palsy; worked with researchers to inform and shape Cerebral Palsy research and collaborated on all Cerebral Palsy Clinical Network workstreams including:  TRANSITION Designing Cerebral Palsy- specific resources to help the people we support navigate the health system when growing out of paediatric care to adult health services.  EARLY DIAGNOSIS Working with clinical partners to ensure consistency and quality of care for families faced with the challenge of a new diagnosis for their child. CHILDREN’S VOICES Providing opportunities for children and young people to provide input into resources from their perspectives and lived experience. CP INTERVENTIONS Selective Dorsal Rhizotomy and Intensive: Investigating specific treatments and therapies that are of interest to families in New Zealand. NZ CP REGISTER Collecting health information about people with Cerebral Palsy in New Zealand. The goal is to know how many people are living with CP in New Zealand and how it impacts them, to enable the Society to advocate for improved outcomes for all people living with Cerebral Palsy. We also enabled research to provide educational resources so people living with Cerebral Palsy are thriving in their community. 4 research publications co-authored on a variety of topics including physical activity, parents’ experience of diagnosis, and working together to design research topics and processes that benefit the CP community 2021-2022 ANNUAL IMPACT REPORT | 15