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Stephen and Neil out to lunch with Dad, Martin. Today, they approach life with resilience, humour, and a determination to live as independently as possible. While everyday tasks can sometimes be challenging due to limited strength and being wheelchair users, they focus on adapting rather than giving up. “Every day can be a bit of a mission, but we just take things as they come and make the best of every day. We adapt how we do things so we can achieve the independent lifestyle we have.” That independent lifestyle is something they are proud of. They live in their own home, manage bills, cook, and keep themselves busy with a range of interests and activities. “Our days are normally pretty busy. When the weather permits, we like getting out and about and living life to the fullest. Other days are spent in the garage working on our project car — a 1977 Escort Estate that we’ve been restoring for the last three years with the help of friends.”Weekly catchups with mates and trips to the rugby are also important parts of life, reinforcing the value of friendships, connection, and community. Over the years, they have also stayed connected with the Muscular Dystrophy Association of New Zealand. As children, they attended MDA camps and have since supported the organisation through fundraising efforts. “MDA has always been there if there’s things we need support with.” Reflecting on their experiences navigating the health system, they acknowledge the frustrations that can come with a long diagnostic process, but emphasise the importance of finding healthcare professionals who listen. “We all know our own health, and our point is to be listened to. Finding the right doctor who understands how things can change is really important.” LIVING LIFE ON THEIR OWN TERMS The Bradley Jenkin Memorial Fund helps MDANZ members with a neuromuscular condition receive funding for access opportunities and specialised resources that enable them to achieve freedom. Perhaps the most powerful message they share is around perception and identity. Too often, assumptions are made about people who use wheelchairs. Assumptions they are passionate about challenging. “We are exactly the same as anyone else —we just use a wheelchair as our way of living an independent life. That’s all the wheelchair is to us. It doesn’t define who we are.” Their advice to others living with a similar condition is simple but powerful: enjoy life, don’t let other people’s perceptions hold you back, and encourage conversation and understanding. “People are always going to stare and wonder. We’d rather people come and have a conversation with us. A lot of people think they know a lot, but after ten minutes of getting to know us, they leave with a whole new understanding. Of us, and maybe of the condition too.” The fund has helped members purchase specialised sports equipment, participate in sporting events, it has contributed towards the cost of obtaining a mobility dog, provided mobility equipment, and assisted with career development such as university and course fees. Applications for Round 3 of the Bradley Jenkin Memorial Fund are now open and close on 31st July 2026. Bradley Jenkin Memorial Fund – Round 3 For criteria, info and to apply, go to www.mda.org.nz > What We Offer