January – Febru ary InTouch | 15 About us OUR PEOPLE The Muscular Dystrophy Association of New Zealand Inc., commonly known as MDANZ, began in the late 1950s. Since then MDANZ has broadened its scope to support many other neuromuscular conditions. Our unique governance structure ensures leadership of the organisation by individuals and family members with lived experience of a neuromuscular condition. We have three regional branches that are supported by the National Support Office based in Auckland. MDANZ supports individuals, families and whānau by MDANZ is a trusted source of specialist information and provides a range of free services and practical support for individuals, families and whānau with lived experience of rare neuromuscular conditions. providing specialist information, practical resources, personalised support services, social networks, campaigns for public awareness and advocacy. And through our research trust, we work to improve care standards and facilitate access to potential treatments for neuromuscular conditions. Our organisation is a registered charity, and we rely almost entirely on voluntary donations from the general public, trusts and other businesses/organisations to continue our work. See more about us at National Support Office Team Kristin Cross Fundraising and Partnerships Advisor Brian Hadley Accountant and Business Manager Natalie Foote Executive Assistant Shelley Butler Accounts Assistant TBC Communications and Marketing Advisor Trevor Jenkin National Executive Chairperson Our Branches Northern Region Ph: 09 415 5682 or 0800 636 787 Mike Schneider Fieldworker Denise Ganley Office Manager Ph: 0800 886 626 Central Region Pip McLean Community Co-ordinator Wellington Region Talitha Vial Fieldworker South Island Region From left to right – Fieldworkers: Ross Paterson, Jane Hazlett and Jackie Stewart. Office Manager: Vivienne Fitzgerald . Ph: 0800 463 222